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Hege Havstad Clemm

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Anna Tora Dalsbotten

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Quality of life

Leader of this group:

PhD Bente Vederhus

Quality of life (QoL) is an essential outcome measure after disease and treatment. The research group's aim is to increase knowledge on how chronic disease or being born extreme preterm is experienced by the child and the family. What are the challenges and how do they cope in daily life? We aim to contribute with knowledge that will make it possible to identify difficulties at an early stage and to intervene appropriately.

 

Follow-up studies are warranted to investigate developmental trajectories. Further, collaboration with the municipal health care service and educational services is essential, and an arena for future research and knowledge transferal. Interdisciplinary clinical research within the specialist health care services is another focus for the research group. PhD and master candidates will be recruited.

 

Currently research on health and well-being in a lifetime perspective after extreme preterm birth is ongoing by follow-up studies of several cohorts born extreme preterm in the 1980’s, 1990’s and 2000.

Members of the research group working clinically in the specialist health care service and in the university college system:

Marit Graue Professor at Bergen University College, Faculty of nursing. PhD 2005 " Health-related quality of life among adolescents with type 1 diabetes". Currently: leader of the DiaBEST research group, research topics: psychosocial health, Quality of Life and coping in children and families, adolescence and adults facing chronic illness.

Berit Båtsvik Assistant Professor at VID Specialized University, Faculty of nursing. MSc 2006 “Health-related quality of life in extremely preterm born adolescents“. Recently published 2015:  “Health-related quality of life may deteriorate from adolescence to young adulthood after extremely preterm birth”.

Liv Irene Ruud - Pediatric Nurse in the Neonatal Intensive Care Unit at Haukeland University Hospital. MSc 2011 ”Nurses’ experiences from participating in evidencebased groups”. Currently research topics: Quality of life, psychosocial health and eating behaviour in children born preterm.

Bente Johanne Vederhus – Intensive care nurse in the Neonatal Intensive Care Unit at Haukeland University Hospital, Assistant Professor at Bergen University College, Faculty of nursing. PhD 2015 “Health-Related Quality of Life, emotional and behavioural difficulties and perception of pain after extreme preterm birth – a population-based longitudinal cohort study”. Currently: Member of the Nordic research group Pain in Early Life – PEARL, research topics: pain, Quality of life and psychosocial health in children born preterm.